WEBVTT

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Communication in work and educational settings

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How can communication with people with profound intellectual and multiple disabilities be successfully organized in work and educational settings?

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The responsibility for establishing interaction

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or communication lies largely

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lies with people without disabilities,

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at least initially, or at least to start with.

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So this arrangement of situations,

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as I said before,

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or even in this sensitivity and responsiveness,

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well, the signs are also different, much more subtle.

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So what can I pick up on

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to develop this into a dialogue?

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And there are also studies or a lot of knowledge on this,

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that we are also guided by intuition to a large extent,

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at least in early childhood.

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And that we orient ourselves,

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for example, by common

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behaviors such as gestures or facial expressions

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or someone smiles

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or someone can perform actions and

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that's exactly that and that pulls

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then through all stages of life,

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so it becomes even more difficult

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the older people are,

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because in childhood you still have the child schema,

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which evokes this affection or

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which makes it easier, I think,

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to make contact,

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with adults it's different,

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because someone initially displays completely different,

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unusual behavior,

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where you first have to adjust to it and then

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But still, the same approach is

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what the person offers me to develop into a dialogue.

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And that is also,

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that this is unconditional,

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meaning that it is possible with anyone.

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And that's just up to me,

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that I take advantage of these opportunities.

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So, unusual signs,

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subtle expressions and

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develop them into a dialogue.

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So there are two sides to the role of communication partner

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and that also has something to do with perspectives,

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that in the early days

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of supporting profound intellectual and multiple disabilities,

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there are quotes,

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for example, from Seeweinig or also from Fröhlich,

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that people were also described as individuals

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who are at best capable of

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responding to communicative offers.

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And this view has actually changed a lot

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and that's also a very important point,

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that it has changed,

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but it also shows that the opportunities

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that I can take advantage of, or an opportunity

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that someone gets for communication, for participation,

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that they are again in this perspective.

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So when I see someone like that,

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who wants to form a relationship

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and that they also want to express themselves,

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that there is a personality behind it

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and that these people also want social relationships

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or want to help shape them,

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then I approach a person in a completely different way.

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And I perceive something completely different.

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And yes, that's exactly the point,

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that this initiative is actually more important

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than provoking this reaction.

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The person who, well,

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who might then be described as easy to care for,

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because they are easy to deal with,

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three alarm bells always go off in my head,

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because they are easier to handle than the child,

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who, so to speak, screams and starts hitting out

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when they can't follow something or when something is different,

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because it's important there,

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so they basically

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learned communicative helplessness, so to speak,

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it doesn't matter what I do,

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or I can't influence anything.

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And that's just a situation

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that you can, for example,

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through self-awareness,

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how important it is to make things predictable.

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What tasks arise in communication for employees in work and educational settings?

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Another thing is what I already mentioned

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with these documentaries,

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that you record experiential knowledge.

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And that can be

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in the form of autobiographies, for example,

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where you write things down,

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write down preferences.

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What does someone like, what does someone dislike?

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What do I do

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when someone is in a stressed state?

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An extended form of this are dialogue books.

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I think that's really nice too.

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This is from the Spastic Aid Association in Berlin.

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They developed it,

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and they even recorded it on video,

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this is what it looks like,

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if the person is doing well,

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this is what it looks like

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when the person is in pain.

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And that every new employee is, so to speak,

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and

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these books are then continued or

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or adapted.

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Of course, not everything stays the same,

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so preferences also change

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or new ones can be developed.

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So, of course, they have to be

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continued and adapted.

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And it's helpful

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to have something like that for each individual,

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that it also states exactly

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for example, rest period, stored in such and such a way,

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that it is documented visually and also,

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that you know what to look out for.

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And that simply brings

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or certain procedures are also defined,

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for example in personal hygiene.

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Because, as I said, this point,

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even if everyone has the best motivation

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and long professional experience,

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does a good job based on their motivation,

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it may be

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that for the person with a profound intellectual and multiple disability,

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that is experienced as a different situation,

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because the sequence is different, for example.

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And that can be avoided.

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It's always about building predictability and expectations

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and tools like this help a great deal with that.

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It's also important to exchange ideas,

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a kind of case conference,

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case conferences can be held in the clinic,

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we hold case conferences, for example,

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where communication is also a topic,

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so it's about patients

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who are regaining communication,

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i.e. those with the most severe brain damage

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for example, those in a persistent vegetative state, then waking up again,

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in the next phase, so to speak, and there

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it is also very important, for example,

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exchange ideas,

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what did you notice this week,

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was it nodding or is it more like closing your eyes

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or is it more like a handshake, so

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Then it's more about the form of yes, no,

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that's already the case with the other group,

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which we're talking about, nothing to expect.

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But you can just see how important it is

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that you then have a period of time, so to speak

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in one direction for a while.

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What I said earlier,

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is that you exchange ideas and then say,

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hey, if that works best,

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then let's all try it out.

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Let's all go in the same direction.

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Then it will just become predictable and foreseeable again.

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Another thing is what we often

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at the assisted communication counseling center,

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that it helps just by itself,

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when people from different areas

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and guided,

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namely via a questionnaire on communication,

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simply exchange ideas about the skills

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that are perceived in everyday life

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or the means of expression

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that are perceived, or what is thought about,

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what the person understands,

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i.e. understanding situations or understanding language.

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And that alone often helps a lot,

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because it's done far too rarely,

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that everyone sits down together

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and just talk about it.

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And that also provides impetus

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to look at things differently

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or perhaps to develop ideas

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or to transfer something from one area

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to another.

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What concepts exist for communicating with people with profound intellectual and multiple disabilities?

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Yes, there are of course specific approaches,

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such as Intensive Interaction

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which I already mentioned,

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where there are studies showing

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that just ten minutes,

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so the problem is always that

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it's one-to-one,
that it's one-on-one,

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so the beginnings of communication are

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one-on-one situations.

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That's just how it is.

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And that's when the killer argument usually comes up:

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we don't have time for that.

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But I think

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that you plan that in the same way

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as you plan other measures,

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you just plan these things too and allow ten minutes for them.

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So it doesn't have to be an hour,

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it doesn't have to be two or three hours,

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ten minutes or so is really enough.

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That's usually the attention span

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that is possible for these people,

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so they focus, so to speak, on engaging with an offer

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or they are usually very short.

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And yes, and then, so to speak, following that person,

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giving them answers,

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instead of expecting reactions,

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because you know

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that this brings significant progress,

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a change, that the signals become clearer

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or that they are used in a more targeted manner,

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if you do this over a longer period of time.

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So that this is really a very important

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point for the development of intentionality.

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And I think

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that should simply be planned for and also taken into account,

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that these small talk sequences,

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there's another program,

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called the Hanging Out Program,

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which is also along these lines.

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There's often this thing,

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what do I do all day then

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or what do we offer?

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Yes, maybe you don't have to do that much.

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Maybe it just makes sense to

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get 100 percent involved with this person

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and just see

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what develops from such a situation.

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Or maybe even film it on video

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and then see what a whisper,

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what a touch does, and then to take that up again,

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expand it and also not knowing

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where it's going,

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not expecting anything specific,

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but having this openness,

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that communication takes place in dialogue and

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interactive exchange

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and that in these ten minutes

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we have equal roles.

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Or maybe even the role of leadership

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even more to this other person.

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As I said, openness, patience,

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so this whole thing of getting involved in

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these unusual forms of communication,

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sensitivity, responsiveness,

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can also be learned.

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There are school programs

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that teach you

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to look more closely and become more sensitive

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to these subtle signals

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and that you can also learn

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to broaden your scope of interpretation

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or to consider interpretations at all.

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So it's not just that

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that it's intuitive, so

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It doesn't have to remain intuitive,

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but you can also acquire skills

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and teach these skills.

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What can communication support look like in work and educational settings?

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Regarding assistive communication,

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because that also plays a role.

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So when we talk about communication,

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I haven't talked about it yet,

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I mean communication with aids.

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And I think that in terms of

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aided communication or

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assisted communication,

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if defined narrowly,

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perhaps only

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defined as assisted communication,

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I just think that there are also many errors.

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On the one hand, there are many errors in practice

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or many things are done that one assumes

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would promote communication,

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but which should be critically questioned.

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And on the other hand, there is very detailed knowledge

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which we are not yet utilizing at all.

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And I think there is still a lot of potential there,

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even in adulthood,

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what can be promoted and, above all, how it can be promoted.

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And one mistake, for example, is

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that the focus is often placed

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on this concrete experience

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of cause and effect or self-efficacy.

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So I press a button and then

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the blender starts up, or when cooking, for example, or

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the shredder in the paper workshop or something like that.

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And that's certainly an important experience,

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so do it, but it's questionable

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whether communication develops as a result.

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Or at least develops further.

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And then you also have to look at

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in the case of profound intellectual and multiple disability, how close,

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so whether the connection can be made at all,

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if the blender is one meter away

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or two meters away.

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So that is also questionable,

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whether pressing the button

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whether this can be experienced in context at all.

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or whether

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things closer to the body are easier to experience.

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And what we know is that

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these social-interactional or emotional aspects

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that they can also be experienced with the aids,

00:13:02.974 --> 00:13:04.734s
o use aids,

00:13: 04.734 --> 00:13:11.074
to demand social interactions, so to speak

00:13:11.074 --> 00:13:13.374
or to summon a person.

00:13:13.374 --> 00:13:17.354
Or, for example, something like,

00:13:17.354 --> 00:13:21.154
playing a physical game, so

00:13:21.698 --> 00:13:23.538
okay, I would have to rethink that for adults,

00:13:23.538 --> 00:13:25.478
but with children it's relatively easy,

00:13:25.478 --> 00:13: 26.818
you can play tickling games or

00:13:26.818 --> 00:13:28.618
recite verses and then press

00:13:28.618 --> 00:13:31. 138
press a button like that again and repeat it again.

00:13:31.138 --> 00:13:34.898
So that the person is turned into a toy, so to speak

00:13:34.898 --> 00:13:36.998
and not mechanically always

00:13:36.998 --> 00:13:38.138
the same reaction,

00:13:38.138 --> 00:13:39.018
that also has the advantage

00:13:39.018 --> 00:13:40.278
that I can introduce emotional aspects

00:13:40.278 --> 00:13:41.918
or variations.

00:13:41.918 --> 00:13:43.958
And that also has something to do

00:13:43.958 --> 00:13:46.518
with experiencing the joy of interaction.

00:13:46.518 --> 00:13:51.411
And that is more than just this concrete cause-and-effect experience

00:13:53.538 --> 00:13:56.998
then it is also the case that

00:13:56.998 --> 00:14:02.858
a very, very important aspect,

00:14:02.858 --> 00:14:08.018
in order to bring about development, so to speak

00:14:08.018 --> 00:14:12.078
towards intentionality with such connections

00:14:12.078 --> 00:14:13.958
between button and then something happens,

00:14:13.958 --> 00:14:15.058
is one aspect,

00:14:15.058 --> 00:14:17.278
that the child itself can independently

00:14:17.278 --> 00:14:20.458
operate this button or sensor.

00:14:20.458 --> 00:14:22.298
And it is quite clear, however,

00:14:22.298 --> 00:14:23.438
that the literature says

00:14:23.906 --> 00:14:26.946
the prerequisite for a child to show learning success

00:14:26.946 --> 00:14:28.526
is this independent activity.

00:14:28.526 --> 00:14:30.226
So the motivation,

00:14:30.226 --> 00:14:32.246
so you need, so to speak,

00:14:32.246 --> 00:14:34.306
so you need an effect

00:14:34.306 --> 00:14:35.306
that is motivating,

00: 14:35.306 --> 00:14:36.606
but you need

00:14:36.606 --> 00:14:39.886
to encourage the child to be active,

00:14:39.886 --> 00:14:41.806
it has to be, so to speak, inside,

00:14:41.806 --> 00:14:44.946
be implementable by itself.

00:14:44.946 --> 00:14:46.126
I can't teach that.

00:14:46.126 --> 00:14:47.666
And teaching would be,

00:14:47.666 --> 00:14:48.986
I take the hand and guide the hand.

00:14:48.986 --> 00:14:51.286
And that's not how the child learns

00:14:51.970 --> 00:14:53.930
what intentionality is.

00:14:53.930 --> 00:14:54.930
It may then learn to

00:14:54.930 --> 00:14:56.330
requests to press the button,

00:14:56.330 --> 00:14:59.890
but not in the sense that I am the one causing something to happen here.

00:14:59.890 --> 00:15:04.070
So this repetition and that,

00:15:04.070 --> 00:15:05.370
which leads to international behavior,

00:15:05.370 --> 00:15:06.050
that only works

00:15:06.050 --> 00:15:11.270
if the action can be carried out independently and self-determined.

00:15:11.270 --> 00:15:13.950
And it's also important to understand

00:15:13.950 --> 00:15:16.230
we are also talking about

00:15:16.230 --> 00:15:19.490
basic support or simple communication aids,

00: 15:19.842 --> 00:15:25.622
I think that in itself is misleading,

00:15:25.622 --> 00:15:27.822
that this support would be simple,

00:15:27.822 --> 00:15:29.222
because it's actually,

00:15:29.222 --> 00:15:30.762
you have to think it through much more carefully.

00:15:30.762 --> 00:15:33.562
And there are a few good examples of this,

00:15:33.562 --> 00:15:34.802
for example from Kvantic,

00:15:34.802 --> 00:15:36.742
who describes this example of the boy

00:15:36.742 --> 00:15:39.442
who spent over half a year learning to play the piano,

00:15:39.442 --> 00:15:42.102
he could press the keys, but he was blind.

00:15:42.102 --> 00:15:44.402
And then in the end they found out

00:15:44.402 --> 00:15:45.782
what his favorite music was,

00:15:45.782 --> 00:15:46.962
by repeatedly

00:15:46.962 --> 00:15:50.366
varying it and offering different things

00:15:50.366 --> 00:15:52.166
and seeing if he has a preference.

00:15:52.166 --> 00:15:53.886
And those are processes

00:15:53.886 --> 00:15:56.486
that require very detailed planning

00:15:56.486 --> 00:15:58.866
as well as patience and perseverance


30600:15:58.866 --> 00:16:00.306
and, above all, documentation.

00:16:00.306 --> 00:16:02.746
So, what is the child doing today?

00:16:02.746 --> 00:16:05.046
Or Lilleniesen's small room,

00:16:05.046 --> 00:16:05.986
that's the same thing.

00:16:05.986 --> 00:16:08.286
So it's not about an activity,

00:16:08.286 --> 00:16:09.686
we're doing this now,

00:16:09.686 --> 00:16:14.486
but when I set learning goals, so to speak,

00:16:14.486 --> 00:16:16.546
then I have to have a plan behind it

00:16:16.546 --> 00:16:17.666
and then I also have to

00:16:18.018 --> 00:16:18.898
document

00:16:18.898 --> 00:16:22.498
what the child is doing and think about it,

00:16:22.498 --> 00:16:24.578
what the next step is or what

00:16:24.578 --> 00:16:26.778
tell me now or what to vary.

00:16:26.778 --> 00:16:28.898
And vary it in such a way

00:16:28.898 --> 00:16:30.778
that it remains recognizable,

00:16:30.778 --> 00:16:32.438
but that it is still something new.

00:16:32.438 --> 00:16:36.098
Yes, then I think it's also very important

00:16:36.158 --> 00:16:39.758
not to be tempted

00:16:39.758 --> 00:16:43.518
to promote communication exclusively

00:16:43.518 --> 00:16:47.278
in therapy or support situations,

00:16:48.226 --> 00:16:50.626
but to be mindful

00:16:50.626 --> 00:16:52.226
for all these aspects,

00:16:52.226 --> 00:16:55.406
predictability, groin marks, responding, and so on,

00:16:55.406 --> 00:16:57.586
into everyday life.

00:16:58.026 --> 00:17:03.466
And as negative examples, I have, for example,

00:17:03.466 --> 00:17:07.726
that you pay attention to time rhythms, for example.

00:17:07.726 --> 00:17:11.326
I don't think that makes any sense at all.

00:17:11.326 --> 00:17:13.606
Or it's impossible for people to reconcile,

00:17:14.146 --> 00:17:16.705
if, for example, they are rushed in the morning

00:17:16.705 --> 00:17:20.665
to be cared for and then have

00:17:20.665 --> 00:17:22.986
have an hour of basal stimulation.

00:17:22.986 --> 00:17:26.126
So these are such contradictory experiences

00:17:26.126 --> 00:17:35.506
even in terms of physical contact,

00:17:35.506 --> 00:17:39.386
that it's impossible to reconcile.

00:17:39.386 --> 00:17:41.146
And it's exactly the same,

00:17:41.146 --> 00:17:43.746
it may also be that you

00:17:44.418 --> 00:17:46.578
planned an offer in the workshop,

00:17:46.578 --> 00:17:50.998
for example, you do something with textiles

00:17:50.998 --> 00:17:55.378
or felt or something like that, elementarization, that kind of offer.

00:17:55.378 --> 00:17:57.398
And then it turns out

00:17:57.398 --> 00:18:00.718
that the person needs to be changed first,

00:18:00.718 --> 00:18:02.158
so the diaper needs to be changed.

00:18:02,158
And then there are two options.

00:18:04,758
One option is to do it quickly,

00:18:06.518 --> 00:18:07.578
but with adults it doesn't work

00:18:07.578 --> 00:18:08.578
as quickly as it does with children.

00:18:08.578 --> 00:18:09.958
With children, there is more of a tendency to

00:18:09.958 --> 00:18:11.118
do it quickly,

00:18:11.118 --> 00:18:13.558
so that you still have time for this offer.

00:18:14.018 --> 00:18:15.798
Or the second decision is simply

00:18:15.798 --> 00:18:16.798
that you say, okay,

00:18:16.798 --> 00:18:20.378
then I'll go out now and take this half hour,

00:18:20.378 --> 00:18:21.538
which I had actually planned for

00:18:21.538 --> 00:18:23.158
the offer and do some promotional care there,

00:18:23.158 --> 00:18:24.458
where I take the time

00:18:24.458 --> 00:18:28.718
to let people do things at their own pace, to include them,

00:18:28.718 --> 00:18:33.618
perhaps also using it for a kind of body language dialogue,

00:18:33.618 --> 00:18:36.658
implementing the rituals in between,

00:18:36.658 --> 00:18:39.758
implementing the agreements and so on.

00:18:40.194 --> 00:18:41.254
Then I have someone afterwards

00:18:41.254 --> 00:18:42.074
who is relaxed,

00:18:42.074 --> 00:18:45.114
who has experienced half an hour of self-efficacy

00:18:45.114 --> 00:18:48.994
and then continues through the day, so to speak.

00:18:48.994 --> 00:18:50.714
And in the other case, I might have someone

00:18:50.714 --> 00:18:53.434
who goes into the situation stressed

00:18:53.434 --> 00:18:55.934
and then doesn't benefit from it, so to speak.